The program was launched in 2011 to encourage bold new ideas and programs to support the LSD community worldwide. The PAL Awards program funds collaborations that support innovative projects in disease awareness and education, community mobilization, non-profit development and good governance activities, patient care and support programs. Overwhelmingly successful in its first four years, we are delighted to launch PAL Awards 2015.

The PAL Awards program is open to non-profit patient organizations, professional associations, and academic institutions. Only proposals involving a collaboration among two or more organizations will be considered. For example, an LSD patient organization in one region of the world may want to partner with an allied organization in another country to support learning exchanges between patient groups. Or, a patient group may partner with a university or hospital to further medical education. The responsibilities of each partner organization must be defined clearly and the contact information for each organization must be provided in the proposal.

A total of $50,000 will be awarded through two competitive grants funding for new initiatives that support the LSD community. All eligible applicants may apply for a maximum grant of $25,000.

Program Changes for 2015 New

On its fifth anniversary changes have been made to the eligibility requirements of the program. We encourage applicants to review the Grant Guidelines and FAQ carefully before applying. Below are some of the most recent changes to this year’s program:

  • This year's PAL Awards program requires that all proposed projects involve a collaboration between two or more organizations.
  • The program is open to all eligible patient organizations. Applicants may partner with one or more of the following: another non-profit patient group, professional association, and/or an academic institution.
  • Organizations do not have to reside in the same country; collaboration may be from the same or across different disease states, providing that the project is focused on the LSD community.
  • All non-English speaking PAL Awards applicants will be offered translation of their project proposal. Project proposals can be submitted in the applicant’s native language. All proposals will be translated into English for judging purposes.
  • If a PAL Awards recipient wishes to apply for a future award, a Final Report (or Progress Report) must be submitted prior to the submission of a new proposal.
  • Organizations that participated in Genzyme’s Proposal Writing Workshop are prohibited from submitting a proposal for the same project.

Application Process

The submission period is July 15, 2015 through September 30, 2015. Applications must include the following in order to be considered eligible: a project proposal, completed Application Form, and a signed Terms and Conditions agreement. The application process includes the following steps:

Step 1
Develop a three-page proposal and budget outlining your proposed project. The roles and responsibilities of each partnering organization must be clearly defined. Remember, a PAL Award will not be considered for projects that have already occurred.

Step 2
Complete the online Application Form, agree to the program Terms and Conditions, and attach your three-page proposal and budget.  

Step 3
All applicants will be notified of the results by mid-November.

Step 4
Recipients will be publicly announced in December.

We strongly encourage all applicants to apply online. If you are unable to apply online, please download the Application Form and submit it by email to patient.advocacy@genzyme.com. By fax, please send to (617) 768-6421.

Grant Guidelines

The full application package consists of a three-page project proposal, completed Application Form and acceptance of the program’s Terms and Conditions. All three items must be received in order for a proposal to be considered eligible. Proposals must include a budget and adhere to the guidelines as set forth in Grant Guidelines.

Review Process

Proposals are reviewed by an External Review Committee and selected through a blinded selection process. Proposals are reviewed using a set of established criteria as explained in the Grant Guidelines. The Review Committee is comprised of up to four committee members with expertise in such areas as philanthropy, rare disease advocacy, rare disease research and treatment, communications, and non-profit management. The biographies of the External Review Committee members will be made available on this website.

"We are genuinely grateful to Genzyme for this opportunity to further cultivate and foster a strong sibling community which will also give parents and providers a deeper understanding of the sibling experience.”

— Kimberly Kubilus, Director of Family Services, NTSAD, 2011 and 2013 PAL Awards Recipient"

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